Palliative care in Parkinson’s disease

akronüüm: PD_Pal
algus:
lõpp:
 
programm: H2020 - Horisont 2020
alaprogramm: HEALTH - Tervishoid, demograafilised muutused ja heaolu
instrument: RIA
projektikonkurss: H2020-SC1-2018-Single-Stage-RTD
projekti number: 825785
kestus kuudes: 42
partnerite arv: 10
 
lühikokkuvõte: Parkinson’s Disease (PD) is the second most common neurodegenerative disorder and is characterized in its advanced stages by motor and non-motor complications causing progressive loss of autonomy in activities of daily living, poor quality of life, marked caregiver distress, and high utilization of medical services. Similar to cancer patients, albeit for much longer duration, PD patients have considerable (and mounting) unmet physical, psychosocial and spiritual needs, and experience great problems with continuity of care. The overall ambition of PD_Pal is to validate a new model of palliative care which would be easily integrated with traditional management when disability limits mobility and independence. PD_Pal will provide an added layer of support to patients, their loved ones, and treating clinicians. PD_Pal randomised controlled trial will provide evidence on the effectiveness of specialized, multidisciplinary, outpatient palliative care intervention (Advance Care Planning) in improving family satisfaction, symptom management and quality of life. PD_Pal will also further prove the feasibility and economic sustainability of this approach by the active involvement of patients lay associations as well relevant medical societies. PD_Pal team includes leading experts in both neurology and palliative care with key-roles in both national and international PD working groups. PD_Pal will develop a new set of evidence-based Guidelines and a Massive Online Course (MOOC) for Palliative Care in PD involving in the process experts from the European Association for Palliative Care, the European Academy of Neurology and the Movement Disorders Society. Thus, PD_Pal is best positioned to transfer this knowledge to all European countries and ensure that “PD_Pal Guidelines” will translate into best practice. The PD_Pal MOOC “Best Care for People with Late Stage Parkinson” will be integrated into the WHO supported interdisciplinary post-graduate palliative care curriculum.
partneri jrk nr ja roll partneri nimi riik kontaktisik koduleht
1 koordinaator UNIVERSITA DEGLI STUDI DI PADOVA IT Angelo ANTONINI www.unipd.it
2 partner STICHTING KATHOLIEKE UNIVERSITEIT NL www.ru.nl
3 partner PD NEUROTECHNOLOGY LTD UK www.pdneurotechnology.com
4 partner PANEPISTIMIO IOANNINON EL www.uoi.gr / www.rc.uoi.gr
5 partner KING'S COLLEGE LONDON UK www.kcl.ac.uk
6 partner MEDIOLANUM CARDIO RESEARCH SRL IT www.mcresearch.org
7 partner UNIVERSITY COLLEGE LONDON UK http://www.ucl.ac.uk
8 partner EESTI LIIGUTUSHAIRETE SELTS EE www.estmodis.ee
9 partner PARACELSUS MEDIZINISCHE PRIVATUNIVERSITAT SALZBURG - PRIVATSTIFTUNG AT www.pmu.ac.at
10 partner PHILIPPS UNIVERSITAET MARBURG DE www.uni-marburg.de