Electronic Health Data in a European Network

akronüüm: EHDEN
algus:
lõpp:
 
programm: H2020 - Horisont 2020
alaprogramm: HEALTH - Tervishoid, demograafilised muutused ja heaolu
instrument: JTI-IMI2-RIA
projektikonkurss: H2020-JTI-IMI2-2017-12-two-stage
projekti number: 806968
kestus kuudes: 60
partnerite arv: 22
 
lühikokkuvõte: Europe is generating huge amounts of patient-level information contained in Electronic Health Record (EHR) systems and other types of health databases. These include structured data in the form of diagnoses, medications, laboratory test results, etc., and unstructured data in clinical narratives. The Electronic Health Data in a European Network (EHDEN) Consortium leverages these vast volumes of data to improve future clinical practice and individual patient outcomes by increasing our understanding of disease and treatment pathways. EHDEN will galvanize transparent and reproducible analytics that will generate valid real-world evidence to improve patient care, and enable medical outcomes-based research at an unprecedented scale. The EHDEN Consortium provides the infrastructure and eco-system supporting disease-specific projects in the IMI Big Data for Better Outcomes (BD4BO) programme. The core of EHDEN is the use of a common data model (OMOP-CDM), standardised outcome assessment (ICHOM), and transparent open-source analytics (OHDSI). The objective of the EHDEN consortium is to provide all the necessary services that enable a distributed European data network to perform fast, scalable and highly reproducible research, while respecting privacy regulations, local data provenance and governance. This will include services and tools to perform data standardization, analytical pipelines, tools to share study results, and tools for stakeholder engagement and training. The EHDEN Consortium combines active participation of stakeholder representatives with proven experience in: a) integrating different data types, methods and technologies to utilize diverse clinical datasets; b) platform development to make methods and datasets Findable, Accessible, Interoperable and Reusable (FAIR); and c) engaging a wide variety of stakeholders, including health technology assessment agencies, regulators and patients.
partneri jrk nr ja roll partneri nimi riik kontaktisik koduleht
1 koordinaator ERASMUS UNIVERSITAIR MEDISCH CENTRUM ROTTERDAM NL Peter RIJNBEEK www.erasmusmc.nl
2 partner SYNAPSE RESEARCH MANAGEMENT PARTNERS SL ES www.synapse-managers.com
3 partner THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD UK www.ox.ac.uk
4 partner Tartu Ülikool EE www.ut.ee
5 partner UNIVERSIDADE DE AVEIRO PT www.ua.pt
6 partner THE HYVE BV NL www.thehyve.nl
7 partner ODYSSEUS DATA SERVICES SRO CZ http://odysseusinc.com/
8 partner FORUM EUROPEEN DES PATIENTS (FPE) LU www.eu-patient.eu
9 partner NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE UK www.nice.org.uk
10 partner Stiftelsen WHO Collaborating Centre for International Drug Monitoring SE http://www.who-umc.org
11 partner INTERNATIONAL CONSORTIUM FOR HEALTH OUTCOMES MEASUREMENT LTD UK www.ichom.org
12 partner JANSSEN PHARMACEUTICA NV BE http://www.janssen.com/
13 partner PFIZER LIMITED UK www.pfizer.com
14 partner ABBVIE INC US www.abbvie.com
15 partner INSTITUT DE RECHERCHES INTERNATIONALES SERVIER FR http://www.servier.fr
16 partner SANOFI-AVENTIS RECHERCHE & DEVELOPPEMENT FR sanofi-aventis.com
17 partner BAYER AKTIENGESELLSCHAFT DE bayer.de
18 partner Eli Lilly and Company Limited UK
19 partner ASTRAZENECA AB SE www.astrazeneca.com
20 partner NOVARTIS PHARMA AG CH
21 partner UCB BIOPHARMA SPRL BE www.ucb.com
22 partner CELGENE MANAGEMENT SARL CH www.celgene.com