RECAP preterm: Research on European Children and Adults born Preterm

akronüüm: RECAP preterm
algus: 2017-01-01
lõpp: 2021-03-31
 
programm: H2020 - Horisont 2020
alaprogramm: HEALTH - Tervishoid, demograafilised muutused ja heaolu
instrument: RIA
projektikonkurss: H2020-SC1-2016-RTD
projekti number: 733280
kestus kuudes: 51
partnerite arv: 21
 
lühikokkuvõte: The project’s overall aim is to improve the health, development and quality of life of children and adults born very preterm (VPT, < 32 weeks of gestation) or very low birth weight (VLBW, < 1500g) – approximately 50 000 births each year in Europe – by establishing an ICT platform to integrate, harmonise and exploit the wealth of data from 20 European cohorts of VPT/VLBW children and adults and their families constituted from the early 1980s to the present, together with data from national registries. VPT/VLBW births have higher risks of cerebral palsy, visual and auditory deficits, impaired cognitive ability, psychiatric disorders and social problems than infants born at term and account for more than a third of the health and educational budgets for children. They may also face higher risks of non-communicable disease as they age. There is emerging evidence of reduced mental health, quality of life, partnering, family life and employment chances and wealth in adulthood. The platform will enable stratified sub-group analyses of sociodemographic and clinical characteristics, neonatal complications, and otherwise rare medical conditions that cannot be studied in national population cohorts. The broad temporal, geographic, cultural and health system diversity makes it possible to study the impact of socioeconomic and organisational contexts and determine the generalisability of outcomes for VPT/VLBW populations. The RECAP platform creates a value chain to promote research and innovation using population cohorts, beginning with the integration of VPT/VLBW cohorts to the translation and dissemination of new knowledge. It will be based on a sustainable governance framework, state-of-the art data management and sharing technologies, tools to strengthen research capacity, a hypothesis-driven research agenda and broad stakeholder participation, including researchers, clinicians, educators, policy makers and very preterm children and adults and their families.
partneri jrk nr ja roll partneri nimi riik kontaktisik koduleht
1 koordinaator NEDERLANDSE ORGANISATIE VOOR TOEGEPAST NATUURWETENSCHAPPELIJK ONDERZOEK TNO NL Maaike BELTMAN www.tno.nl
2 partner THE UNIVERSITY OF WARWICK UK www.warwick.ac.uk
3 partner INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE FR www.inserm.fr
4 partner INSTITUTO DE SAUDE PUBLICA DA UNIVERSIDADE DO PORTO PT www.ispup.up.pt
5 partner VAN VEEN EVERT BERNARD NL
6 partner INESC TEC - INSTITUTO DE ENGENHARIA DE SISTEMAS E COMPUTADORES, TECNOLOGIA E CIENCIA PT www.inesctec.pt
7 partner UNIVERSITY OF LEICESTER UK www.le.ac.uk
8 partner TERVEYDEN JA HYVINVOINNIN LAITOS FI www.thl.fi
9 partner EUROPEAN FOUNDATION FOR THE CARE OF NEWBORN INFANTS DE www.efcni.org
10 partner NORGES TEKNISK-NATURVITENSKAPELIGE UNIVERSITET NTNU NO www.ntnu.no
11 partner KAROLINSKA INSTITUTET SE www.ki.se
12 partner UNIVERSITAETSKLINIKUM BONN DE http://www.ukb.uni-bonn.de/quick2web/internet/internet.nsf/directname/home
13 partner HELSINGIN YLIOPISTO FI www.helsinki.fi
14 partner OSPEDALE PEDIATRICO BAMBINO GESU IT www.ospedalebambinogesu.it
15 partner REGION HOVEDSTADEN DK www.regionh.dk
16 partner PHILIPPS UNIVERSITAET MARBURG DE www.uni-marburg.de
17 partner Tartu Ülikool EE www.ut.ee
18 partner UNIVERSITEIT ANTWERPEN BE www.uantwerpen.be
19 partner Concentris Research Management GmbH DE www.concentris.de
20 partner EXTENSIVE LIFE OY FI http://www.extensivelife.com
21 partner STICHTING MLC FOUNDATION NL